“I want to try to stop, if possible, anyone else going through that same situation and falling into the same gap where she didn’t have adequate care to keep her safe,” Kirstie said.

The family has appealed the decision to withdraw her NHS-funded care, but it has been rejected twice.

They have now appealed to the Parliamentary and Health Service Ombudsman.

Philippa Hubbard, Bradford District and Craven Health and Care Partnership’s nursing director, and Iain Macbeath, strategic director for adult social care at Bradford Council, said they “recognise the distress that the family has experienced”.

The pair said they worked closely together to ensure people who are eligible for care and support received services appropriate to their assessed needs.

In a statement, they added: “This includes regularly reviewing care arrangements, responding to changes in a person’s health or circumstances and working with individuals and families to help put the right support in place.

“We know that decisions about care can have a significant impact on individuals and their families and remain committed to working together to provide safe, compassionate and person-centred care and support.

“As with any case where a concern like this is raised, we are reaching out to the family to let them know what their rights are should they wish to have the case investigated further.”

A Department of Health and Social Care spokesperson said: “Our deepest sympathies are with Pearl Henderson’s family. This government is determined to ensure everyone has access to high-quality, compassionate care, from diagnosis through to end of life.

“Through the 10 Year Health Plan, we are addressing variations in diagnosis rates to deliver rapid and significant improvements in quality of care and productivity. This includes ensuring people receive a clear care plan, helping services support people better as their needs change.”

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